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May – Brain Tumour Awareness Month

I’ve not posted for a long time. In fact, I have only written two posts so far. After having received my diagnosis it was very much a coping mechanism. I’m a talker and therefore telling people really helped me. The reason I’m writing again is because May is brain tumour awareness month and this suddenly inspired me.
So much has happened since my last post. Importantly, I finally got to see a Neurosurgeon in Southampton when I was told I needed surgery. The thought of having brain surgery is a pretty scary thing. But I was glad to have closure. I knew. Knew they are going to break open my skull and try to remove the tumour which happens to sit next to the brain stem so they have to move some stuff around. I asked him what kind of music they were listening to during the eviction. Music has always been important to me so in my opinion this was a valid question. They won’t though, they won’t listen to music. I find this a bit upsetting but guess there are other things to worry about. So far, I have only met one of the Neurosurgeons, the chief I had on the phone. He cracked me up, he was so funny. The reason I couldn’t meet him in person was due to the Covid-19 pandemic. I am so pleased he called though. I have told him, that before he cracked my head open I’d want to meet him face to face. At which point he laughed and told me that was fair enough because what if I didn’t like him. But I did and I guess he liked me too, reflecting in his letter I later received in which he wrote “It was a pleasure talking to Simone on the phone”.
I should have had my surgery at the end of February, but appointments have been cancelled and cancelled and cancelled again. Currently I’m waiting for a new appointment to come through. But who knows when this is going to happen. In the meantime I keep plodding on, try to do my best at being a Mum and concentrate on building my business.

As it’s brain tumour awareness month I would just like to say, the chances of having a brain tumour are extremely small. But if you think something is not right go to the doctors and keep going until you have an answer. Ask for a second opinion if something doesn’t feel right. That’s what I did and I’m glad I did.

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